The Chiari Institute Chiari Malformation | Syringomyelia Chiari Malformation Treatment | Syringomyelia Treatment Chiari Surgeons The Chiari Institute | 865 Northern Boulevard | Great Neck, NY 11021 | Tel: 516-570-4400 The Chiari Institute | Contact Information
Chiari Malformation Surgery
Chiari Malformation Treatment | Syringomyelia Treatment
The Chiari Institute | Insurance Information
Chiari Malformation Fundraising

New Insurance Information for the Chiari Institute Click here to read the press release.

Dr. Harold Rekate announces the opening of the Hypothalamic Hamartoma Center Click here to read the press release.

New York Chapter
Chiari Malformation:
A Name Which
Leads to Unnecessary Confusion
Click here to view
the video .

 
     
     
 

Chiari Malformation Surgery Testimonials

 
 

Chiari Malformation Surgery

 

Christine's Makeover

Christine Marchesano

Major events in our lives, no matter how traumatic, often turn out to being a blessing in the end. The outcome also alters the quality of life, our perspective of us and our attitude concerning the situation. Such was true when I was diagnosed with Ehler's Danlos syndrome, cranial settling and associated Chiari 1 malformation in March of 2007.

Facing brain and spinal surgery in May of 2007, although very frightening both for me and my family, it was something I knew I had to go through with an optimistic attitude. I also knew I had to face this ordeal head on and go through surgery, if I was going to get physically healthier and stop the progression of the cranial settling.

In answer to Dr. Bolognese's question at my sixth month appointment, "How has this experience improved the quality of your life?" I firmly believe that because of the Dr's intervention, the support system I have and my determining will and faith, this surgery has allowed me to look in the mirror and be confident with the person I am and break free from the emotional and physical scars of my condition I was born with. This is my story and it is my hope that by sharing my experience with Chiari and having surgery this will help support those who are at the beginning of the road facing similar situations.

I am now eight months past my surgery, feeling great and enjoying life again. Here is my story. (PDF)

 

Chiari Malformation Surgery

© Danielle P. Richards/The Record

 

Breath of Hope

Maja Cvetkovska

Confined to a wheelchair for years, Maja spent much of her life as a prisoner in her own body, suffering through excruciating spinal surgeries in her native Macedonia that left her unable to walk on her own, feed herself or even breathe comfortably. But since her most recent surgery in May, Maja has reached the point that she no longer uses a wheelchair. And while each step is a herculean effort, she can walk.

"Before the surgery, I can't move my legs, I can't move my hand, I can't breathe and I can't sleep because I can't breathe," Maja said recently.

A year ago, if she had tried to speak during one of her grueling physical therapy sessions, she would have gasped for air between sentences, said her physical therapist, Vince Burke.

"After the surgery, she had hope for the first time," Burke said.

Read Maja's story.

Watch Maja's video.

 

Chiari Malformation Surgery

 

Marissa's Story

Marissa Irwin

Now age 20 and a professional model, Marissa Irwin was 12 years old when she developed a stomach ache. When the stomach pain recurred along with headaches and sore throats, her mother, Gayle, took the girl to the family doctor. From here, mother and daughter began a frightening five-year journey from specialist to specialist as Marissa’s condition deteriorated; in constant pain by her 15th birthday, she could no longer attend school and spent most days so weak and dizzy she could barely walk.

Read Marissa's story. (PDF)

 

Top of page

 
     
 
     
  Services  
  - What We Treat  
      - Chiari Malformation  
      - Syringomyelia  
      - Related Conditions  
  - Diagnosis  
  - Treatment  
  - Surgeries  
  - Videos  
  - Testimonials  
     
 
 
     
   
 

The Chiari Institute specializes in treating patients with Chiari Malformation and Syringomyelia.

The Chiari Institute | 611 Northern Boulevard | Suite 150 | Great Neck, NY 11021 | 516-570-4400 | www.chiariinstitute.com

 
 

Copyright © 2007 - 2012 The Chiari Institute and MedNet Technologies, Inc. All Rights Reserved.
MedNet-Sites - Powered by MedNet Technologies, Inc.
MedNet-Sites by MedNet Technologies

 
 
The Chiari Institute